Web Survey Bibliography
Background: Clinical research often lacks participants of young age. Adding to the small amount of scientific studies that focus on the population entering adulthood, there are also difficulties to recruit them. To overcome this, there is a need to develop and scientifically evaluate modes for data collection that are suitable for adolescents and young adults. With this in mind we performed 39 online focus group discussions among young survivors of childhood cancer to explore thoughts and experiences around dating, being intimate with someone, and having children.
Objective: The aim of the study was to evaluate online focus group discussions as a mode for data collection on sensitive issues among young persons with a cancer experience.
Methods: One hundred thirty-three young persons (16-25 years) previously diagnosed with cancer, participated in 39 synchronous online focus group discussions (response rate 134/369, 36%). The mode of administration was evaluated by analyzing participant characteristics and interactions during discussions, as well as group members’ evaluations of the discussions.
Results: Persons diagnosed with central nervous tumors (n=30, 27%) participated to a lower extent than those with other cancer types (n=103, 39%; χ 2= 4.89, P=.03). The participants described various health impairments that correspond to what would be expected among cancer survivors including neuropsychiatric conditions and writing disabilities. Even though participants were interested in others’ experiences, sexual issues needed more probing by the moderators than did fertility-related issues. Group evaluations revealed that participants appreciated communicating on the suggested topics and thought that it was easier to discuss sex when it was possible to be anonymous toward other group members.
Web survey bibliography (37)
- Determinants of polling accuracy: the effect of opt-in Internet surveys; 2017; Sohlberg, J.; Gilljam, M.; Martinsson, J.
- Online Focus Group Discussion is a Valid and Feasible Mode When Investigating Sensitive Topics Among...; 2016; Wettergren, L.; Eriksson, L. E.; Nilsson, J.; Jarvaeus, A.; Lampic, C.
- Implementation of Web-Based Respondent Driven Sampling among Men Who Have Sex with Men in Sweden; 2016; Stroemdahl, S.; Lu, X.; Bengtsson, L.; Liljeros, F.; Thorson, A.
- Measuring Generalized Trust: An Examination of Question Wording and the Number of Scale Points; 2016; Lundmark, S.; Giljam, M.; Dahlberg, S.
- Same, Same but Different: Effects of mixing Web and mail modes in audience research; 2015; Bergstroem, A.
- An Empirical Test of Nonresponse Bias in Internet Surveys; 2015; af Wahlberg, AE; Poom, L.
- The problem of non-response in population surveys on the topic of HIV and sexuality: a comparative study...; 2014; Wallander, L.; H.; Mannheimer, L. N.; Oestergren, P. O.; Plantin, L.Tikkanen, R. H.
- Perioperative management in order to minimise postoperative delirium and postoperative cognitive dysfunction...; 2014; Jildenstål, P. K., Jakobsson, J. G., Hallen, J. L., Berggren, L., Rawal, N.
- Measuring Political Participation—Testing Social Desirability Bias in a Web-Survey Experiment; 2014; Persson, M., Solevid, M.
- Process Planning for CNC Machining of Swedish Subcontractors – A Web Survey; 2014; Anderberg, S., Beno, T., Pejryd, L.
- Postal recruitment into a longitudinal online panel survey. The effects of different number of reminder...; 2013; Martinsson, J.
- Web panel surveys – can they be designed and used in a scientifically sound way?; 2013; Svensson, J.
- A standard with quality indicators for web panel surveys: a Swedish example; 2013; Nyfjaell, M.
- The effect of short formative diagnostic web quizzes with minimal feedback; 2013; Baelter, O., Enstroem, E., Klingenberg, B.
- Measure the response burden in the Swedish Intrastat system; 2012; Weideskog, F.
- Triton: a general tool for data collection and micro editing; 2011; Erikson, J.
- How to Survey All 14 000 Swedish Local Political Representatives And Get 10 000 Responses.; 2011; Gilljam, M., Granberg, D., Holm, B., Persson, M.
- Internet-Based Follow-Up Questionnaire for Measuring Patient-Reported Outcome after Total Hip Replacement...; 2011; Rolfson, O., Salomonsson, R., Garellick, G., Dahlberg, L. E.
- What it takes to be a top 100 website; 2010
- Using a Mixed-Mode Design to Survey Ethnic Minorities?; 2010; Feskens, R., Kappelhof, J.
- Item Nonresponse Analysis for a Mixed-Mode Survey.; 2010; Lorenc, B., Olsson, K.
- A Comparison of Psychometric Properties Between Internet and Paper Versions of Two Depression Instruments...; 2010; Andersson, G., Engstroem, I., Hollaendare, F.
- Questionnaire Design Guidelines for Establishment Surveys; 2010; Morrison, R. L., Dillman, D. A., Christian, L. M.
- Internet administration of self-report measures commonly used in research on social anxiety disorder...; 2010; Hedman, E., Ljótsson, B., Rück, C., Furmark, T., Carlbring, P., Lindefors, N., Andersson, G.
- E-epidemiology : Adapting epidemiological methods for the 21st century; 2009; Bexelius, C.
- Statistical analysis of on-line courses; 2009; Baelter, O.
- Optimal Contact Strategy in a Mail and Web Mixed Mode Survey ; 2009; Holmberg, A., Lorenc, B., Werner, P.
- SMS versus telephone interviews for epidemiological data collection: feasibility study estimating influenza...; 2009; Bexelius, C., Merk, H., Sandin, S., Ekman, A., Nyren, O., Kuehlmann-Berenzon, S., Linde, A., Litton,...
- Web-based measurement: Effect of completing single or multiple items per webpage; 2009; Thorndike, F. P., Carlbring, P., Smyth, F. L., Magee, J. C., Gonder-Frederick, L., Ost, L. G., Ritterband...
- Swedish National Data Service's Strategy for Sharing and Mediating Data; 2008; Carlhed, C., Alfredsson, I.
- The power of the visible: Visual design for Web surveys; 2006; Couper, M. P.
- On the cost-efficiency of probability sampling based mail surveys with a Web response option; 2005; Werner, P.
- Simple Approaches to Estimating the Variance of the Propensity Score Weighted Estimator Applied on Volunteer...; 2005; Isaksson, A., Lee, S.
- Web-based and Mailed Questionnaires: A Comparison of Response Rates and Compliance; 2005; Baelter, K., Balter, O., Fondell, E., Trolle-Lagerros, Y.
- On the Variability of Estimates Based on Propensity-score-weighted Data from Web Panels; 2004; Forsman, G., Danielsson, S., Isaksson, A.
- On-line qualitative market research: Interviewing the world at a fingertip; 2002; Scholl, N., Mulders, S., Drent, R.
- Doec propensity score weighting work for Web Surveys; 2002; Forsman, G., Varedian, M.
- Calibration as a standard method for treatment of nonresponse; 1999; Lundstrom, S., Sarndal, C.-E.